Wednesday, October 8, 2008


First of all I want to thank all of your for your kind words, your support, your thoughts and prayers and phone calls/e-mails :)! So I am sure you are all wondering what happened yesterday at our Assessment with the Autism team, so I guess I am as ready as I am ever going to be to tell you what is going on.
We were told it was basically unconclusive, that they didn't think he has Autism or anything on the spectrum but they want to wait and see (grrr...more waiting). They want us to get him into see a OT (Occupational Therapist), they want us to take parenting course (not too sure but felt sort of insulted by that), they also want to see us back in 6 months into the Developmental clinic. Sure I am happy that it probably isn't Autism or anything on the spectrum, but at the same time that diagnosis would explain everything with him and we would be getting the much needed help that we need for him.
So no answers yet, just felt like I was there for 4-6 hours just for them to tell me to wait 6 more months...that was frustrating. Then I guess I felt that what about help for us for the here and now?? Nothing...except we are going to keep him in the Preschool he is in now, since we have seen lots of improvement through them and we will be keeping him on that restricted diet until further notice. We also got news today that we officially have an EI (Early Interventionist), we will be meeting her on Oct. 22nd at 10 a.m. here at our house :)!
The assessment team told us that he has definite Sensory issues that are causing difficulties with him to get through each passing day, and certainly making an impact on our family (as in it makes it hard to do things outside our home). They also told us that he has some behavioral issues, and the word OCD (Obsessive Compulsive Disorder) was used a few times but they won't tell us really what is going on for now.

So there you have it, more waiting folks...



Tracy.H said...

Sorry to hear that you did not get the definitive answers you were looking for. Hopefully the OT and the other therapist will be able to help you out though. Maybe all these things combined will help you to start seeing some changes. Try and stay positive and be sure to 'enjoy' the little changes as they come!! :0)

Diana Jiron Graff said...

Hang in there Catherine, Ethan is so loveable as you know he is one of Diego's all time favorite guys ;) come for a visit next week we love to see you and Maiah or well all of you, we will have to plan a get together during a weekend

Deborah March said...

Oh my, waiting is SO hard, especially when we're concerned for out children. Remembering your sewwt Ethan in my God-blesses.